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Innovations in Stakeholder Engagement

This conference took place on October 21, 2011, in Rockville, Maryland. The conference explored innovative approaches for engaging stakeholders, including patients and consumers, clinicians, and others, to provide input to the design, implementation, and other aspects of research. Presenters from public and private organizations describe promising technologies, activities, and other innovative approaches they have used to involve patients, consumers, clinicians and communities in their work. Topics include Online Collaborative Platforms, Online Communities, Grassroots Organizing, and Collaborative Research.

Learn more about the presenters by viewing their Biosketches (PDF, 347 kB).

Meeting summary (PDF, 474 kB).


These presentations are available in a streaming video format. For help viewing these proceedings, please see the Viewers, Players, and Plug-ins page.

Overview of Types of Online Collaborative Platforms by Chris Haller, Founder and CEO, Urban Interactive Studios

Using Collaborative Platforms for Communities of Practice
by Lakshmi Grama, Senior Digital Content Strategist, National Cancer Institute (NCI)

American Medical Association (AMA) App Challenge and AMA Idealab
by Brian Eaggleston, Physician Outreach and Retention Manager, AMA and Robert Hicks, Business Development Process Director, AMA

Overview and Online Communities of Health Care Professionals
by Atul Shah, Senior Vice President, Strategic Client Development, Within 3

Online Communities: Value for Patients, Researchers, Clinicians
by Dave Clifford, Public Health and Governmental Affairs, PatientsLikeMe

Community Engagement Initiative: Meaningful Public Participation in EPA Waste Programs
by Ellen Manges, Senior Advisor, Office of Solid Waste and Emergency Response (OSWER), Environmental Protection Agency (EPA)

High Plains Research Network Consumer Advisory Council
by Ned Norman and Sergio Sanchez, of the Community Advisory Council of High Plains Research Network

Engagement of Mental Health Consumers in Research and Evaluation
by Ingrid Goldstrom, Director of the Evaluation of Children’s Mental Health Initiative (CMHI), Substance Abuse and Mental Health Services Administration (SAMHSA)

United Kingdom Initiatives: James Lind Alliance, and INVOLVE Programs
by Ela Pathak-Sen, Director, Commotion