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  • Stakeholder Assessment of Research and Data Needs for Comparative Effectiveness Research in Medicaid Populations
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Abstract - Final – Jan. 4, 2013

Stakeholder Assessment of Research and Data Needs for Comparative Effectiveness Research in Medicaid Populations

Topic Abstract

Background: Comparative effectiveness research and patient-centered outcomes research (CER/PCOR) can play a critical role in improving both processes and outcomes of healthcare in the United States. For CER/PCOR to meet this potential, the research will need to address topics of high relevance and to study interventions that can be implemented in real-world settings. These concerns are especially pressing for high-risk populations such as those served by Medicaid. Identifying the best set of priority topics for CER will require a combined approach that obtains input from a wide variety of perspectives, but refines that input with insight into the research areas most likely to yield productive and actionable information.

Objective/Research Questions: To conduct stakeholder assessment to identify 10 priority topics for Medicaid populations where new research is needed and can feasibly be performed.

Study design: The investigators will work closely with Medicaid Medical Directors (MMD’s) and will obtain input from diverse stakeholders representing a range of perspectives. After identifying a broad array of potential topics the investigators will carefully consider the strengths and limitations of the potential data sources for addressing these topics, in order to narrow the topics to the final list.

Methods: In addition to the MMD’s, the investigators have identified stakeholders who represent a wide diversity of views. We included groups that can serve as voices for patient and community perspectives, provider viewpoints and policymaking groups from both the public and private sectors. From an initial MMD meeting at the end of November, 2012, the investigators will generate an extensive preliminary list of important areas for new CER. Next, they will hold one-on-one follow-ups with MMDs to place topics into more specific contexts and to begin considering the data requirements for individual candidate topics. There will be 15-20 candidate topics that will be presented at the larger stakeholder meeting to be held in September of 2013. The priority list at the conclusion of the stakeholder meeting will reflect multiple stages of input from stakeholders, MMD’s, AHRQ, and the research team. The input of these stakeholder groups will be complemented by the practical, research and data oriented input from DEcIDE researchers, to ensure that actionable and beneficial research priorities will be identified from this project. The final report will review each of the refined topics in detail, reflecting all of the input and insight gathered in the processes described. Individual stakeholders or MMD’s will be contacted as needed to refine specific elements of the final questions. The final report will include a substantial focus on future research needs, including those that go beyond the priority topics identified.

Expected Outputs: Submission of 10 fully developed priority research topics for Medicaid populations.

Expected date of project completion: Spring 2014

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