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  • Registries for Evaluating Patient Outcomes: A User’s Guide: 3rd Edition
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Overview – Feb. 21, 2012

Registries for Evaluating Patient Outcomes: A User's Guide: 3rd Edition

Background

The AHRQ publication, “Registries for Evaluating Patient Outcomes: A User’s Guide” was published in 2007 by AHRQ as a reference handbook with practical information on the design, operation, and analysis of patient registries. In 2010, the User’s Guide was updated with a focus on collecting information to assess patient outcomes.

This new project will expand the User’s Guide to address 11 new topics in registry methodology and update the existing chapters to cover new legislation and other changes in registry science. It will also include real-world contemporary case examples to illustrate key principles of registry design, operation, and evaluation and to demonstrate different strategies and perspectives to address common challenges.

This new project is one of four secondary goals of a larger project, Developing a Registry of Patient Registries. In that project the primary goal is to engage stakeholders in the design and development of a searchable database of existing patient registries in the United States with a number of important features that will enable searching, sharing and patient recruiting. Learn more about this project and its other secondary goals designed to support the efficient use of high-quality registries for clinical research.

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