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Slide 1

Partnering with Patients to Disseminate Research Products
Lawrence Sadwin

October, 13 2011

Slide 2

Partnering with Patients to Disseminate Research Products

  • Relationships with patient and consumer organizations create channels for disseminating results
  • Establishing trust is essential to effective dissemination

Slide 3

Suggestions for Effective Dissemination

  • Begin thinking early in the research process about the target audience for the end product
  • Establish why the information is important for them
  • Decide on a key message and make it easy to remember
  • Be as direct as possible in the message
    • (e.g., “this does not work,” “this can hurt you”)

Slide 4

Suggestions for Effective Dissemination

  • Produce information in a way that is very accessible to consumers
  • Make it as easy as possible for organizations and individuals to disseminate information
  • Partner with known and trusted organizations

Slide 5

Case Study

American Heart Association Activities

Lawrence Sadwin
2011

Slide 6

Photograph of a sign: The sign says: "Caution, this sign has sharp edges. Do not touch the edges of this sign. Also, the bridge is out ahead."

Slide 7

Photograph: Photograph of a woman with a bypass scar. Words next to the image say "Now that we've got your attention, do you know the signs of a heart attack."
American Heart Association.

Slide 8

Example #1

Lifestyle Change,
Primary & Secondary Prevention

Slide 9

Website: www.heart.org

  • Choose to Move
  • Heart Profilers
  • MyLifeCheck

Slide 10

Image: Screenshot of Choose to Move website.

Slide 11

Image: Screenshot of Heart Profilers website.

Slide 12

Image: Screenshot of 'small steps to BIG changes' of the My Life Check website.

Slide 13

Example #2

Emergency Cardiac Care

Slide 14

Emergency Cardiac Care

Use “Sticky Messages”

  • 15:2
  • Stayin’ Alive (the BeeGees)
  • Push Hard and Fast in the Center

Slide 15

Photograph: Photo of various chests with the words "Learn hands-only CPR on the body you want your hands on."

Slide 16

Example #3

Stroke Care

Slide 17

Photos and logos for the Get with the Guidelines program. Photos include an ambulance and a map of the U.S. Images include logos for Get With the Guidelines, the Joint Commission Quality Approval, and Power to End Stroke.

Slide 18

State Stroke Systems

  • EMS & Pre-Hospital
  • Acute Care
  • Secondary Intervention
  • Rehabilitation

Slide 19

Tell the Public

Image: Screenshot of the Warning Signs website.

Slide 20

Measuring Progress

Indicator Baseline
1999
Current
Status
2010
Target
Change
(from baseline to now )

Coronary Heart Disease Deaths/100,000

194.6

144.4

146.7

-25.8%

Stroke Deaths/100,000

61.6

46.6

46.3

-24.4%

Slide 21

Informing Healthcare

Two mouse clicks

  • www.heart.org
  • Healthcare/Researchers

Photograph: Image of 5 health care professionals, with the words 'Focus on Quality, Learn More'

Slide 22

Summary

  • Develop ongoing relationships with Patient and Consumer organizations
  • Involve patients and consumer representatives early in the process
  • Disseminate information in easy-to read formats & through multiple channels