1. What is the decision or change (e.g. clinical topic, practice guideline, system design, delivery of care) you are facing or struggling with where a summary of the evidence would be helpful?

We are interested in the comparison of benefits vs. harms for the care and treatment of endometriosis and how unbiased review would improve upon the current shortcomings evidenced in the available "guidelines", which are both scant and conflicting.

2. Why are you struggling with this issue?

There is extensive conflict, industry bias and lack of evidence in current practice guidelines.

3. What do you want to see changed? How will you know that your issue is improving or has been addressed?

We wish to see an independent review to improve time to diagnosis, access to effective care and markedly improved support of people struggling with endometriosis.

4. When do you need the evidence report?

Tue, 12/ 31/2024

5. What will you do with the evidence report?

Towards the drastic improvement of care and implementation of better guidelines/diagnosis and treatment algorithms. Please take a moment to review the attached for a scoping review of the issues. Many thanks.

Supporting Documentation

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Agency for Healthcare Research and Quality's Effective Health Care Program.pdf (PDF, 215 KB)

Optional Information About You

What is your role or perspective? Professionals & Patient Consumers

If you are you making a suggestion on behalf of an organization, please state the name of the organization Center for Endometriosis Care & EndoGirlsBlog

May we contact you if we have questions about your nomination? Yes