TREATMENT OF MYASTHENIA GRAVIS. OTHER THAN MESTINON AND CHEMO (IMURON)DUE TO THE SIDE EFFECTS OF THIS TREATMENT MANY PATIENTS SUFFER MORE THAN ARE HELPED.

Briefly describe a specific question, or set of related questions, about a health care test or treatment that this program should consider.: TREATMENT OF MYASTHENIA GRAVIS. OTHER THAN MESTINON AND CHEMO (IMURON)DUE TO THE SIDE EFFECTS OF THIS TREATMENT MANY PATIENTS SUFFER MORE THAN ARE HELPED.
Does your question include a comparison of different health care approaches? (If no, your topic will still be considered.): yes
If yes, explain the specific technologies, devices, drugs, or interventions you would like to see compared:: MESTINON AND IMURON FOR TREATMENT FOR MYASTHENIA GRAVIS
What patients or group(s) of patients does your question apply to? (Please include specific details such as age range, gender, coexisting diagnoses, and indications for therapy.): PATIENTS WITH MULTIBLE MEDICAL PROBLEMS AND MYASTHENIA GRAVIS
Are there subgroups of patients that your question might apply to? (For example, an ethnic group, stage or severity of a disease.)
Describe the health-related benefits you are interested in. (For example, improvements in patient symptoms or problems from treatment or diagnosis.): IMPROVING PROBLEM SIDE EFFECTS. tTHE CURRENT TREATMENTS ARE VERY HARSH AND PAINFULL. CAUSING OTHER MEDICAL PROBLEMS TO BE EXASPERATED.
Describe any health-related risks, side effects, or harms that you are concerned about.: WEIGHT LSS AND GAIN, VOMITING, BONEMARROW BREAKDOWN, LOW RED BLOOD CELL, ANIMIEA, KIDNEY AND LIVER SHUT DOWN ECT...

Does your question include a health care drug, intervention, device, or technology available (or likely to be available) in the U.S.?

yes

Which priority area(s) and population(s) does this topic apply to? (check all that apply)

EHC Priority Conditions (updated in 2008)

AHRQ Priority Populations

Women
Elderly
Individuals with special health care needs, including individuals with disabilities or who need chronic care or end-of-life health care

Federal Health Care Program

Describe why this topic is important.: I HAVE MANY MEDICAL PROBLEMS, DEGENERITIVE BONE, SPINAL DEGENERATION ARTIFICAL L-5 S-1, NECK FUSION C 5-6-7- WITH PERMENT NERVE DAMAGE. DIAGNOSED WITH MYASTHENA GRAVIS 6 MONTHS AGO AND HAVE HAD NUMEROUS TRIPS TO ER. TREATMENT FOR MG IS RISKY FOR CANCER OF THE BONEMARROW AND OTHER CACERS AND IMURON AND MESTINON ARE CAUSING ADDITIONAL PROBLEMS WITH MY DIGESTIVE AND BOWLS
What specifically motivated you to ask this question? (For example, you are developing a clinical guideline, working with a policy with large uncertainty about the appropriate approach, costly intervention, new research you have read, items in the media you may have seen, a clinical practice dilemma you know of, etc.): PERSONAL INFORMATION
Does your question represent uncertainty for clinicians and/or policy-makers? (For example, variations in clinical care, controversy in what constitutes appropriate clinical care, or a policy decision.): yes
If yes, please explain:: LOOKING FOR ALTERNITIVE TREATMENTS

How will an answer to your research question be used or help inform decisions for you or your group?: ANY HELP WOULD BE GOOD, THESE SIDE EFFECTS ARE DEADLY AND I AM HOPING A SALUTION CAN BE FOUND
Describe the timeframe in which an answer to your question is needed.: NO TIME FRAME
Describe any health disparities, inequities, or impact on vulnerable populations your question applies to.: TREATMENTS AND UPKEEP BLOOD DRAWS WEELY ARE VERY COSTLY. PERSONALLY IT IS COSTING $260 weekly for blood draws and reports. uninsured and underinsured can not afford such pricing. I have had to file bankruptcy and am now on disabilty, which mean the government is foot my bill. I am woried that the cost is overely costly an when you add other medical problems the cost rises morte and more.

Other Information About You: (optional)

Please choose a description that best describes your role or perspective: (you may select more than one category if appropriate): ANY HELP WOULD BE GOOD, THESE SIDE EFFECTS ARE DEADLY AND I AM HOPING A SALUTION CAN BE FOUND

Are you making a suggestion as an individual or on behalf of an organization?: Individual

Please tell us how you heard about the Effective Health Care Program: YOU EMAILD ME

Effective Health Care Program