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White Paper – Sept. 20, 2012

Proposed Governance and Data Management Policy for the Systematic Review Data Repository

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Abstract

The Systematic Review Data Repository (SRDR) is an open-access, collaborative, Web-based repository of systematic review data currently under development by the Evidence-based Practice Center (EPC) at Tufts Medical Center with support from the Agency for Healthcare Research and Quality (AHRQ). The system was recently released to EPCs, some selective organizations, and the public in June 2012. The purpose of this repository is to improve the quality and efficiency of producing systematic reviews, in order to inform policy decisions with regards to health care. In the present report, we examine several major nontechnical challenges related to future governance of the repository, as well as questions regarding user certification, data curation and quality control, and intellectual property rights. We explore two possible future funding scenarios and their attendant governance structures, based on a yearlong discussion with the existing project scientific advisory committee and other experts. Our purpose is to advance the conversation with respect to a permanent institutionalization of the SRDR project in order to encourage the participation of relevant stakeholders in the development and success of this important resource.