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Web-based Cancer Communication and Decision-Making Systems: Connecting Patients, Caregivers and Clinicians for Improved Health Outcomes (Session IV)

White Paper Sep 30, 2009

Page Contents

This conference took place on September 22, 2009, at the Agency for Healthcare Research and Quality in Gaithersburg, Maryland. The conference explored how interactive media can be an effective, clinically significant resource for transforming science into practice through improved communication and decisionmaking.

This fourth session focuses on connecting patients, caregivers, and clinicians for improved health outcomes.


Lori L. DuBenske, Ph.D., Presenter

Anne Willis, M.A., Respondent

Jerome A. Osheroff, M.D., Respondent


Lori L. Dubenske, Ph.D., earned her doctorate in clinical psychology from the University of North Texas in Denton. After completing her doctorate, she joined the faculty of the University of Wisconsin School of Medicine and Public Health in Madison as a clinical assistant professor in the Cancer Psychology Program in the Department of Psychiatry. In this capacity, she provides psychological assessment and psychotherapy to cancer patients and their family members across all stages of the disease process and treatment. She also has tested models of caregiver strain and the bereavement process and has assessed the needs of cancer caregivers at all stages of the disease. Dr. Dubenske has served as a content developer, a project director, and now as a coinvestigator within the University of Wisconsin-based Center of Excellence in Cancer Communications Research. Funded by the National Cancer Institute, the Center is investigating how communications technologies, specifically Web-based cancer communication and support tools, can improve the heatlh-care experiences of cancer patients and their family members. She also has directed the Clinician Integration Study, which tested the value of status reports as communication tools for clinical teams and patients with lung cancer and their caregivers. In this study, the status reports were generated through a Web-based information and support system known as CHESS (Comprehensive Health Enhancement Support System). Currently, Dr. Dubenske is serving as the coprincipal investigator on a new initiative, which is a follow-up study to examine how this module might affect the survival of patients with lung cancer.

Disclosures: nothing to disclose.

Jerome A. Osheroff, M.D., FACP, FACMI, is Chief Clinical Informatics Officer for Thomson Reuters. He also is an adjunct assistant professor of medicine at the University of Pennsylvania in Philadelphia and a member of the medical staff for the University of Pennsylvania Health System. At Thomas Reuter, Dr. Osterhoff helps ensure that the company's decision-support solutions are optimally responsive to pressing health-care performance-improvement needs. For more than 25 years, Dr. Osheroff has fostered understanding of health care-delivery information needs and has worked to ensure that information technology is harnessed to fully address these needs. These efforts include guiding the development of commercially successful clinical decision-support products, helping health-care organizations and clinicians use decision-support tools to improve care processes and outcomes, leading investigations of clinical information management, and helping guide national policy on clinical decision support. Dr. Osheroff is the lead author and editor of an award-winning and best-selling series of clinical decision-support guidebooks and the lead author of the report A Roadmap for National Action on Clinical Decision Support.

Disclosures: ownership interest – Thomson Reuters.

Anne Willis, M.A., is Director of Survivorship Programs for the National Coalition for Cancer Survivorship NCCS). A 12-year survivor of Ewing's sarcoma, Ms. Willis oversees the organization's patient education resources, including the award-winning Cancer Survival Toolbox®. Her focus is on developing programs and resources to empower survivors to be more involved in the decisionmaking process from cancer diagnosis through the end of life. Before joining the NCCS staff, Ms. Willis worked in the Office of Advocacy Relations at the National Cancer Institute, where she planned, promoted, and executed the first-ever patient advocacy summit.

Disclosures: nothing to disclose.

Project Timeline

Translating Information Into Action: Improving Quality of Care Through Interactive Media (Eisenberg Center Conference Series 2009)

Jan 4, 2017
Topic Initiated
Sep 30, 2009
White Paper
Sep 30, 2009
Sep 30, 2009
Sep 30, 2009
Sep 30, 2009
Sep 30, 2009
Page last reviewed July 2019
Page originally created November 2017

Internet Citation: White Paper: Web-based Cancer Communication and Decision-Making Systems: Connecting Patients, Caregivers and Clinicians for Improved Health Outcomes (Session IV). Content last reviewed July 2019. Effective Health Care Program, Agency for Healthcare Research and Quality, Rockville, MD.

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