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Registries for Evaluating Patient Outcomes: A User's Guide, 3rd Edition

Research Report Feb 21, 2012


The AHRQ publication "Registries for Evaluating Patient Outcomes: A User's Guide" (PDF, 1.2 MB) was published in 2007 by AHRQ as a reference handbook with practical information on the design, operation, and analysis of patient registries. In 2010, the User's Guide was updated with a focus on collecting information to assess patient outcomes.

This third edition (PDF, 2.1 MB) expands the User's Guide to address 11 new topics in registry methodology and update the existing chapters to cover new legislation and other changes in registry science. It also includes real-world contemporary case examples to illustrate key principles of registry design, operation, and evaluation and to demonstrate different strategies and perspectives to address common challenges. Addendums were added in 2018 and 2019 to address contemporary issues in patient registries.

Project Timeline

Registries for Evaluating Patient Outcomes: A User's Guide

Nov 10, 2016
Topic Initiated
Jan 1, 2005
May 16, 2007
Sep 27, 2010
Feb 21, 2012
Research Report
Sep 21, 2020
Page last reviewed March 2022
Page originally created November 2017

Internet Citation: Research Report: Registries for Evaluating Patient Outcomes: A User's Guide, 3rd Edition. Content last reviewed March 2022. Effective Health Care Program, Agency for Healthcare Research and Quality, Rockville, MD.

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