The AHRQ publication, "Registries for Evaluating Patient Outcomes: A User's Guide" was first published in 2007 as a reference handbook with practical information on the design, operation, and analysis of patient registries. It provides practical information on the design, operation, and analysis of patient registries. It also includes real-world contemporary case examples to illustrate key principles of registry design, operation, and evaluation and to demonstrate different strategies and perspectives to address common challenges.
To remain relevant, the User's Guide was updated periodically to address emerging issues in registry science and methodology. In 2010, the User's Guide was updated with a focus on collecting information to assess patient outcomes. In 2014, the User's Guide was updated to address new topics in registry methodology to address 11 new topics in registry methodology and update the existing chapters to cover new legislation and other changes in registry science.
The most current edition of the User's Guide is the fourth edition, published in 2020. The fourth edition supersedes previous versions, which are available online below.
- Learn more and access the third edition of the User's Guide.
- Learn more and access the second edition of the User's Guide.
- Learn more and access the first edition of the User's Guide.