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Effective Health Care Program

Barriers to Patient Engagement (Session II)

White Paper

This conference took place on September 17, 2015, in Houston, Texas and brought together nine nationally prominent experts in patient engagement to address the following topics: 1) understanding patient engagement conceptually and contextually; 2) overcoming barriers to patient engagement; 3) activating facilitators of patient engagement; and 4) presenting case studies of successful interventions for increasing patient engagement.

This second session addresses barriers to patient engagement.

Presentations*

Engaging Patients with Low Health Literacy

Lauren A. McCormack, Ph.D.
Research Triangle Institute, North Carolina

"That’s the Doctor’s Job": Overcoming Patient Reluctance to be Involved

Jennifer A. Blumenthal-Barby, Ph.D., M.A.
Baylor College of Medicine, Houston, Texas

Cultural Challenges to Engaging Patients in Medical Decisionmaking

Sarah T. Hawley, Ph.D., M.P.H.
University of Michigan, Ann Arbor, Michigan

*These presentations are available for viewing in video (MP4) and PDF. For help accessing these formats, please visit the Viewers, Players, and Plug-ins page.

Biosketches

Jennifer A. Blumenthal-Barby, Ph.D., M.A., is an Associate Professor in the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She received her PhD in philosophy, with a specialization in bioethics, from Michigan State University. Dr. Blumenthal-Barby's research focuses on the ethical and practical questions raised by research on human judgment and decision making. She has received funding for her conceptual work from a Greenwall Foundation Faculty Scholars Award, is a co-investigator on an NIH funded study to investigate decision making in the clinical integration of whole genome sequencing, and is principal investigator on a PCORI award to develop a patient decision aid for ventricular assist device placement.

Sarah T. Hawley, Ph.D., M.P.H., holds a Ph.D. in health services research from the University of North Carolina and an M.P.H. from Yale University Department of Public Health. Her primary research is in decision making related to cancer prevention and control, particularly among racial/ethnic minority and underserved populations. She has a specific focus on understanding the role of patient preferences and patient-physician communication in use of screening and treatment services and in reducing health disparities. Dr. Hawley's current research projects focus on understanding breast cancer treatment decision making among racial/ethnic minority women, and in evaluating the impact of a preference-tailored decision aid for increasing colon cancer screening in diverse primary care patients.

Lauren A. McCormack, Ph.D., M.S.P.H., focuses on promoting informed decision making through effective communication and measuring and evaluating the impact of health-related information on knowledge, attitudes, and behaviors. Dr. McCormack has studied public health topics including cancer, diabetes, and developmental disabilities and examined health insurance decision making. For nearly two decades, she has led or participated in studies for AHRQ, CDC, NCI, FDA, CMS, and Robert Wood Johnson Foundation.