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Effective Health Care Program

Registries for Evaluating Patient Outcomes: A User’s Guide

Abstract

The AHRQ publication, “Registries for Evaluating Patient Outcomes: A User’s Guide” was first published in 2007 by AHRQ as a reference handbook with practical information on the design, operation, and analysis of patient registries. In 2010, the User’s Guide was updated with a focus on collecting information to assess patient outcomes. The third edition, published in 2014, expands the User’s Guide to address 11 new topics in registry methodology and update the existing chapters to cover new legislation and other changes in registry science. It also includes real-world contemporary case examples to illustrate key principles of registry design, operation, and evaluation and to demonstrate different strategies and perspectives to address common challenges. Learn more and access the third edition.

Work is now underway on the fourth edition, to be published in 2019. This new edition will update existing chapters and provide information on emerging issues in registry science and methodology. Learn more about the 3rd Edition Addendum and access white papers and eBooks produced as part of this project.

Prior editions of the User’s Guide are also available.