for patients with vasculitus neurophy ,is there any treatment besides steroids

Briefly describe a specific question, or set of related questions, about a health care test or treatment that this program should consider.: for patients with vasculitus neurophy ,is there any treatment besides steroids
Does your question include a comparison of different health care approaches? (If no, your topic will still be considered.): no
If yes, explain the specific technologies, devices, drugs, or interventions you would like to see compared:
What patients or group(s) of patients does your question apply to? (Please include specific details such as age range, gender, coexisting diagnoses, and indications for therapy.): patient is 43yr.female,treated by nine doctors in 3years with no hope of a cure,it affects her legs and arms and hands at different times
Are there subgroups of patients that your question might apply to? (For example, an ethnic group, stage or severity of a disease.): how long before she becomes completly disabled
Describe the health-related benefits you are interested in. (For example, improvements in patient symptoms or problems from treatment or diagnosis.)
Describe any health-related risks, side effects, or harms that you are concerned about.

Does your question include a health care drug, intervention, device, or technology available (or likely to be available) in the U.S.?

yes

Which priority area(s) and population(s) does this topic apply to? (check all that apply)

AHRQ Priority Populations

Describe why this topic is important.: at this time she is unemployed and has no insurance.IThe subject is my niece and lives in another city,I am 81 and cant help anymore
What specifically motivated you to ask this question? (For example, you are developing a clinical guideline, working with a policy with large uncertainty about the appropriate approach, costly intervention, new research you have read, items in the media you may have seen, a clinical practice dilemma you know of, etc.): I have done as much research as i can on the internet and see very little hope for a cure
Does your question represent uncertainty for clinicians and/or policy-makers? (For example, variations in clinical care, controversy in what constitutes appropriate clinical care, or a policy decision.): yes
If yes, please explain:: the patient lives in new york and went to internest,clinicians at 2 different hospitals when she had health insurance

How will an answer to your research question be used or help inform decisions for you or your group?: offer some hope
Describe the timeframe in which an answer to your question is needed.: Inever heard someone so young getting this disease
Describe any health disparities, inequities, or impact on vulnerable populations your question applies to.

Other Information About You: (optional)

Please choose a description that best describes your role or perspective: (you may select more than one category if appropriate): offer some hope

Are you making a suggestion as an individual or on behalf of an organization?: Individual

Please tell us how you heard about the Effective Health Care Program: read an a story in good housekeeping magazine

Effective Health Care Program