- Briefly describe a specific question, or set of related questions, about a health care test or treatment that this program should consider.
pulmonary hypertension for adults with sleep apnea
- Does your question include a comparison of different health care approaches? (If no, your topic will still be considered.)
no
- If yes, explain the specific technologies, devices, drugs, or interventions you would like to see compared:
- What patients or group(s) of patients does your question apply to? (Please include specific details such as age range, gender, coexisting diagnoses, and indications for therapy.)
age 50 to 90; Letairis did not work
- Are there subgroups of patients that your question might apply to? (For example, an ethnic group, stage or severity of a disease.)
severity of disease
- Describe the health-related benefits you are interested in. (For example, improvements in patient symptoms or problems from treatment or diagnosis.)
being able to breathe better with medication or surgery.
- Describe any health-related risks, side effects, or harms that you are concerned about.
I took Letairis and every joint in my body hurt - had to discontinue the medication
Appropriateness for EHC Program
- Does your question include a health care drug, intervention, device, or technology available (or likely to be available) in the U.S.?
yes
- Which priority area(s) and population(s) does this topic apply to? (check all that apply)
-
- EHC Priority Conditions (updated in 2008)
- Pulmonary disease/asthma
- AHRQ Priority Populations
- Low income groups
- Women
- Elderly
- Federal Health Care Program
- Medicare
Importance
- Describe why this topic is important.
The only medication offered to me was Letairis and it didn't work.
Limits my ability to work out to lose weight and stay healthy.
- What specifically motivated you to ask this question? (For example, you are developing a clinical guideline, working with a policy with large uncertainty about the appropriate approach, costly intervention, new research you have read, items in the media you may have seen, a clinical practice dilemma you know of, etc.)
- Does your question represent uncertainty for clinicians and/or policy-makers? (For example, variations in clinical care, controversy in what constitutes appropriate clinical care, or a policy decision.)
no
- If yes, please explain:
Potential Impact
- How will an answer to your research question be used or help inform decisions for you or your group?
My quality of life would be greatly improved (and so would the lives of others suffering from this debilitating condition.
- Describe the timeframe in which an answer to your question is needed.
Hopefully before my time is up - I am now 72 years young.
- Describe any health disparities, inequities, or impact on vulnerable populations your question applies to.
Nominator Information
- Other Information About You: (optional)
-
- Please choose a description that best describes your role or perspective: (you may select more than one category if appropriate)
My quality of life would be greatly improved (and so would the lives of others suffering from this debilitating condition.
- Are you making a suggestion as an individual or on behalf of an organization?
Individual
- Please tell us how you heard about the Effective Health Care Program
Good Housekeeping magazine article